Now, to mark the two-year anniversary since six-year-old Layla-Rose passed away, Kirsty has released a moving new video of her daughter’s dance troupe acting out the signs and symptoms of the disease.
Layla-Rose, from Oldham, died in 2017 within hours of falling ill. An inquest last year ruled that her death could have been avoided.
Speaking about why Layla-Rose’s dance troupe The Collettes put together the sequence – which includes showing the signs and symptoms of the disease such as “irritability” and “severe headache, stiff neck” – Kirsty said, “Layla had been a member of that group from the moment she could dance, she loved it and was due to be that year’s Tots Leader before she passed away."
“Everyone in the group was of course devastated by her death so wanted to do something to help prevent it happening to others."
“This dance sequence is a brilliant way to show what the signs and symptoms of the disease are. I hope it gets seen by as many people as possible”.
It was only recently that Kirsty had been able to tell the story of what happened on the night of her daughter’s death. Speaking to Meningitis Now last month, she told us how Layla-Rose had skipped off to school, smiling and saying “Bye Mum!” to her.
But later that day she had started feeling ill, with symptoms including head and belly ache, tiredness and a high temperature. By evening, Kirsty took her to A&E at her local hospital where she started to go downhill rapidly.
Tragically, later that night she passed away. “It just all happened so quick, we never had a chance to say goodbye,” said Kirsty.
“One minute she was looking at me and giving a little smile, and then she just went”.
Kirsty, along with her older children Melika, 11, and Emrae, 3, and husband Ramazan, have struggled ever since Layla-Rose’s death but have been supported by Meningitis Now.
“We have had a lot of support from Meningitis Now, which we are very grateful for,” said Kirsty, who was pregnant with her fourth child Laylen at the time of Layla’s death and has since had Enver-Jax. “This is why we turned to them for help with publicising this video."
“We really want it to reach as wide an audience as possible – so hope we can work together to achieve this.”