Supporters will recall that last December we reported that the Government had given the green light to a strategy for acquired brain injury (ABI), which can be an after-effect of meningitis.
People whose lives have been affected by ABI are now being invited to share their experiences and give ideas on how to improve the care and support available.
The government is asking people to come forward with their views on how to ensure a better quality of life for those who have experienced brain damage after birth.
Acquired brain injuries can be caused by traumas such as road traffic accidents, assaults and falls, or by medical issues like tumours or diseases, such as meningitis.
More support needed
More support is needed to find ways to improve services and also increase rates of prevention and recognising symptoms.
The request for engagement is going out to those with ABI, their families, healthcare professionals and charities over the next 12 weeks.
It will provide an opportunity to hear first-hand from the people most affected to help find out what services are needed, where there may be gaps, and how the government can support services to help fill these.
An online questionnaire is now available for people to complete and you can take part here.
Making a strong case
Bev Corbett, our Director of Information and Support, has welcomed the call for evidence and is urging as many people as possible to respond to help make the strongest case for improved services.
“The call for evidence will help the panel to focus and prioritise their efforts, so we need people with lived experience of brain injury – whether, survivors or carers – to participate. This will ensure the panel has the best available information to develop their strategy.”
She added: “Meningitis is a small but significant part of the ABI family. This strategy is a hugely significant move and it will make a big difference to all those people who need our support because of an acquired brain injury, however caused.
“We will be responding as a charity supporting those fighting back from meningitis, but I would urge our individual and organisational supporters to do likewise, to ensure people with an acquired brain injury caused by meningitis have access to the support they need in the future.
“It is absolutely essential that people living with acquired brain injury get the best possible care and treatment.”