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Karen's Mollaret's story

1st September 2021

Karen, from Wales, is keen to raise awareness of Mollaret’s meningitis, a recurrent form of viral meningitis. She has now had this seven times since 2008

Meningitis case study Image generic

She’s determined to help others and show them that they can beat the odds, as she relates here.

“My story started in 2008 when I was 37. I became ill and it took me six months to recover. After two weeks in hospital I was diagnosed with viral meningitis.

“It came back exactly a year later. The hospital wouldn’t believe me as they said you can’t have viral meningitis twice.

“A junior doctor contacted a specialist of rare disease who diagnosed me with Mollaret’s meningitis.

“Following time to recover and time with a specialist I was also diagnosed with CFS and fibromyalgia.

Highlight Mollaret’s to a wider audience

“It’s now 2021 and having had the disease seven times and the two conditions I have fought the odds and am still living my life without help. I am a survivor but a rare one.

“The objective is to help people like me and to highlight Mollaret’s to a wider audience as it’s so poorly known and understood.

“Help me help others and show them that you can beat the odds however difficult and lonely the journey can be.”