Harley's story

27th May 2015

It was the morning of 26 August 2010 and baby Harley Jones drank his milk as normal, but, he soon became floppy and grey, with a bulging fontanelle and was staring with sunken eyes

Harley
His mother, Hayley, of Glossop, tells us how her brave baby battled meningitis.

“At just six weeks old, Harley contracted pneumococcal meningitis. He had his milk as normal in the morning and I didn’t suspect anything."

“As the morning went on, Harley became floppy, grey, his eyes sank and his fontanelle bulged. I rang my sister to come and she rang our GP, who said ring 999."

“Harley went to our local hospital Tameside General, where they did blood tests the doctor rang Royal Manchester’s Children’s ICU."

“Harley suffered two cardiac arrests due to fluid around his heart. After MRI scans and many other tests, we were taken into a room and told meningitis had caused 65 per cent brain damage."

“We were told that Harley would be unable to do anything himself. Harley will be five on 16th July 2015. He can’t walk; he can only say a few words and can’t feed himself apart from finger food."

“He’s doubly incontinent, but his smile melts your heart and he’s such a happy little boy.”

  • Thomas

    Thomas's story

    Whilst his loss of hearing is devastating news we were blessed to be amongst the lucky ones

  • Callum

    Callum's story

    To see him lying there helpless was just unbearable

  • Noah

    Noah T's story

    We were convinced we were going to lose him

  • Noah

    Noah P's story

    I spent that 24 hours crying and insisting that I felt there was something wrong with my baby