Barbara and Bob Johnson

We are very proud that our grandson, Louis Van-Looy, has recently been appointed a Young Ambassador for Meningitis Now

Barbara and Bob Johnson

Community ambassador

Hello, we are Barbara and Bob Johnson from Essex. We started supporting the charity in the days of the National Meningitis Trust after the death of our son James in May 1991 from Group 'B' meningitis and septicaemia.

In 2001 I was honoured to be invited to join the Board of Trustees of the Meningitis Trust. I served on the Board for almost 12 years until the merger with Meningitis UK. I could not have undertaken that role without Barbara's unwavering help and support.

We must add that everyone at Meningitis Now, or the Meningitis Trust as it was back then, have been a constant and unerring source of support and help. By allowing us to be 'part of the team' they have provided us with an important focus. We have experienced at first hand what they can do and will forever remain grateful to them.

Barbara and I continue to support the work of Meningitis Now in the hope that just maybe what we have done and what we hope to continue to do might save some other parents from going through what we experienced.

  • Holly M

    Holly McNaughton

    Community ambassador

    Hi, I’m Holly. I first became familiar with meningitis when my mum contracted it on 14th April 2012.

  • Anne Cadden

    Anne Cadden

    Community ambassador

    In January 2001, my daughter, Helen, died from meningococcal septicaemia aged 18 while in her first year at university. A friend from Helen’s school, Richard Murphy, also died from meningitis seven weeks later at another university.

  • Lesley Leaver

    Lesley Chandler-Clare

    Community ambassador

    I lost my husband, Kevin, to meningococcal septicaemia in January 2000, just five hours after being admitted to hospital. I have been supported by Meningitis Now ever since.

  • Anne Gaston

    Anne Gaston

    Community ambassador

    My son is now 21, but when he was six months old, he was rushed to hospital with suspected meningitis. Thankfully it turned out not to be meningitis, but it made me realise how little I knew about this devastating disease